On Thursday April 27, 2017, the boys and I attended a special, public fundraiser for Scleroderma Awareness. There were some very special guests there, in addition to some of the children in this area who live with this disease every day, but before I get to these special guests, let me tell you some of what I learned about this disease.
Scleroderma is a rare and debilitating autoimmune disease for which there is no cure. It is often progressive and sometimes, it is fatal. It affects every age and gender. It’s neither preventable or contagious. It confuses even the best of the medical field because it’s difficult to diagnose.
Scleroderma attacks the Vascular System, cutting off blood flow to extremities, resulting in gangrene and amputation. It affects the Gastrointestinal Tract, Heart, Kidneys, Lungs, and Esophagus. It causes hardening, thickening, and tightening of the skin which often causes devastating results to one’s facial appearance and one’s mobility.
For more information, please check out the Scleroderma Foundation.
Now, do you want to know who came out for this fundraiser? Here are some pictures of my kids and me, along with the special guests who come out to raise funds for special causes such as this, for absolutely no charge!
All of these superheroes are from the “Heroes Alliance NM”. Please, definitely go and check them out, they are the best, I’m telling you. They do this on their own time, tirelessly, with no pay. They care.
As always, I would just love it if you would join me in all of “My Journeys Through Life.” Just go to the subscription box at the top of the blog and enter your email information. After that, you will always know when there is something new happening. I hope to see you here very soon! -)
One response to “A Special Fundraiser We Attended!”
I have a cousin who’s daughter who has it. They tried putting her in public school, it just
Didn’t work out. Mom and dad both work so they put her in a special needs