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Another busy week…

VBS begins tomorrow at our church, and our two oldest boys are in the plays this year.  The theme for our VBS this time is the life of the apostle Paul, and there are five plays, one each day from Monday through Friday. Our boys are in all of them, playing a different character each day. I am teaching a kindergarten class. The boys had to stay at church all day last Sunday to work on the plays, then also be there this past Friday evening, and yesterday afternoon. Each day this week they’ll have to stay for a few hours after VBS to practice for the next day’s play. So in a bit I will need to go make their lunch to take with them tomorrow so they can eat between VBS and practice. They’re very excited, this is their first year of being in the play. I forgot to get pennies for the boys for the penny march each day, so I still need to do that.

Next weekend will be a graduation open house for our niece Annie, so there’s a lot going on, and I need to fit a lot into the time we have this week. I need to get all four boys and my husband in for hair cuts, find time for getting laundry done before the weekend, work on the house that needs straightening, keep everyone fed, and get in our piano practice, too! We are continuing our piano lessons through the summer. Our teacher says I’m actually doing very well, which was nice to hear, since I really didn’t think I was. I’m hoping to be able to play a hymn well enough to play for evening offering soon.

I’ve lost about 9 or 10 of the 15 to 20 pounds I’m supposed to lose by my scheduling appointment foe my surgery, so I think I’m doing well there, the appointment is for August 13th.

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Medical Clearance

So Tuesday was my medical clearance appointment at Henry Ford Hospital. The doctor cleared me, but did say I need to get another A1c test before my scheduling appointment, because she said that Dr. Carlin will want to see that my blood sugar levels are coming down. I am confident that my A1c will show that they are, because when I check my blood I an see the results are so much lower now that I’m not drinking pop anymore, plus have cut way back on fast food. I’ve lost about 8 pounds, 12 more to reach the goal the surgeon set for me to lose before scheduling surgery.  Then I just have to keep it off until surgery, because if I gain it back they will postpone my surgery. My scheduling appointment is August 13, so I anticipate the surgery being scheduled for sometime after the first of the year, since they are already scheduling months ahead.  When I was there for my consult on April 28th, they were scheduling October surgeries! This isn’t a bad thing though, because my husband has no more paid days for this year other than the one he’s taking for my scheduling day. He’s going to stay at the hospital for the two nights I’ll be there, plus be home for at least a few days after, so it’s for the best that it won’t be until then, we really can’t afford for him to just take a week off with no pay.

So, I finally found a protein bar I don’t hate, Pure Protein bars, which I can buy at Sam’s Club. Now I have to decide on a protein powder, because I will be on that mixed into liquids, etc for a while before and after surgery. I’m currently testing the different flavors from www.unjury.com, and so far they are OK. At least I don’t have to force them down like the stuff I bought from GNC, that was HORRIBLE!!!  I tried the vanilla flavor with orange Crystal Lite last night. I’m thinking if I get a blender and add ice they might be even better.

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Boys and broken bones…

Well, we just got home from a sudden trip to the emergency room! Our oldest was out with his respite worker today, and they went to the beach to hang out. They were throwing a football, and our son jammed his right index finger. Unfortunately, it is the same finger he broke 5 years ago, and had to have surgery on, so we felt we should get it checked out, just in case. He definitely as at least a hairline fracture, and will be seing the orthpedic Dr. who did his surgery before.  I told him that SOME people will do anything to get out of piano prctice, LOL!  I’m getting the impression right now that the worst thing is that he can’t manage to play his nintendo DS. He also can’t get it wet, and he can’t play the way he normally does, either, so he’s not a very happy camper just now. We’re going to a friend’s for a couple days soon for a birthday party, and they have a pool, but I was told if we wrap it real well in a plastic bag and tape it he could go in the water.  We’ll have to do that for him to shower, too. But he cannot go out after church on Sunday and Wednesday evenings and play volleyball with the other kids, which is making him sad. The one positive is that he didn’t break it a bad as the last time, when it as bent sideways and almost backward!

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Found Fun Exercise!

It really hurts when I go walking. REALLY hurts. So today, I decided to check an exercise DVD out from the library, and got one of the Sweatin’ to the Oldies tapes re-done onto DVD.  It is as much of a workout as I remember from all those years ago! I managed to do the entire 45 minutes, and had fun doing it, too!  I did need to modify some of the stuff to accomodate my lack of fitness and my pain, but still, it was a workout. One of my kids actually did almost the whole thing with me, too.  So, since I can keep a DVD for 7 days from the library, I will do that, and then check out one of the other DVD’s in the series, until I go through all of them, then start again, until I have the money to order all of them for myself.  I see no reason at all why exercise shouldn’t be fun, if it isn’t, I won’t do as much of it as I need to do.  I also bought a pedometer, and with the help of Richard Simmons and his DVD, my step count so far today is over 4100!  Now to learn how to use my new food scale, and figure out calories and protein in meals cooked at home.

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Why do they call us “Stay at Home Moms”?!

After all, we aren’t just staying home! Today while I WAS at home, I did laundry, herded cats (I mean children), and did errands. Yesterday, I took the kids to their weekly home-school gym and swim program at the YMCA. Tomorrow, grocery shopping, then taking the kids to Pizza Hut for their last “Book-it” for the year, and also for the twins’ birthday. Busy busy today, really ran out of incentive to cook, so while out doing errands I zipped through McDonald’s for the boys, and got them cheeseburgers and fries from the dollar menu. I got a salad at Wendy’s for me. Nobody got pop, and I heard loud and long complaining over that, but we had already told them that number one, we wouldn’t be letting them have pop very often anymore, and number two, fast food was going to become a (very) rare treat, instead of a regular thing.

My exercise prescription from when I went to Detroit instructs me to begin with three times a week, so I decided to use tomorrow, when I’m doing tons of walking while out getting groceries for my third time this week.

My HAP health track nurse Michelle, who calls me every week talked with me yesterday about how we’re going to meet my goal of 15 – 20 pounds lost before my apointment to schedule my surgery, and also about how to maintain it until surgery, because if I gain it back the surgery will be cancelled, and I’ll have to start all over again waiting for a new date. I’m going to keep trying to eat lower calorie than before, and possibly do a meal replacement drink or bar for lunch, because lunch is the one meal I tend to mess up on, especially if I’m out and about. So, tomorrow while shopping I will be checking out protein powder, etc, probably at GNC if there’s one in the mall here.

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My letter of Intent

I am required to write and give to the surgeon a letter of intent detailing my reasons for wanting bariatric surgery, my understanding of the surgery and the lifestyle changes that will be necessary, and what knd of support I’ll be receiving. This is what I wrote, and will be giving to him at my appointment tomorrow ( I chose to adapt some of what I’ve written in this blog for part of the letter):

All of my adult life, I’ve battled with weight/food issues.  I’ve lost weight, lots and lots of it, but never enough, and never for very long. People who don’t struggle with obesity and weight loss problems don’t often “get” it; a lot of the time they think it’s just a matter of will power. But when you have well over 100 pounds to lose, it becomes overwhelming, and you just give up. So then, you’re seen as a big fat failure, yet again.

That’s how I’ve felt for so long it’s the only way I really recall feeling.  I remember that even when I was a teen, my parents were constantly on me about my weight, and the ideal when I was in high school (the 1970’s) seemed to be slim body, long, straight hair, and I didn’t fit either description. So, my memory is that I was a fat girl who was just a failure.  But after my mom died, I got my senior picture back, the big one that she had in a frame, and the girl I saw was NOT a fat girl. She was definitely a CURVY girl, and tall, so she definitely weighed more than a lot of the girls at school, but that girl was not FAT.  Food became a control issue. My parents would monitor my eating, so I snuck food when I was out of the house. Sweets and junk food, for the most part.

Then, when I was 18, I went out on a date with someone who violently assaulted and raped me.  Before that, I was a virgin. This was extremely traumatic for me, and I realize now that I began eating more to kind of put a barrier between me and any intimate physical relationship.   

Even later, as an adult, I’d come home from family gatherings and head straight for food to soothe my hurts, my anger, over whatever happened that day.  Over the years there were a lot of stress factors in my life, and I’ve gained well over a hundred pounds just since I got married almost 20 years ago.

Four years ago in May, I was in Karmanos cancer facility (in Detroit, MI) having a total hysterectomy as the result of being diagnosed with endometrial cancer.  The surgeon told me then that if I didn’t lose the excess weight, my cancer would most likely come back, and that I had to do it even if it meant bariatric treatment. Well, I did try. I lost about 30 pounds, and then gained it all back, plus more.  As usual.

For the past few years, I’ve been researching bariatric treatment. I finally came to the decision that this was what I needed to do, so I spoke with my primary care physician about possibly having lapband surgery. He felt that it would not give me good enough results because I have so much to lose, and he recommended gastric bypass.  He was able to show the insurance company (Health Alliance Plan, or HAP) why it’s medically necessary for me to do this now, as opposed to being made to go through a 12 month hospital based/supervised weight loss program (thankfully, as the ones the insurance would cover are not where we live), because it’s riskier for me to wait at this point with my BMI of about 51 and co-morbidities to go with it, such as diabetes.  So, HAP gave me authorization to go to Detroit (about 2 hours away, depending on traffic, etc) and have the psychological evaluation, which I did on March 23rd.  When we got home from Detroit it was after business hours and there was a voice mail waiting from the HAP insurance person with a call back number, saying they’d received my information from the psychological evaluation and to call back.  I, in turn, left HER a voice mail.  She called the next morning to tell me I had passed the evaluation and gave me an authorization number for my surgery, putting me officially on this journey!

I called the Henry Ford Hospital Bariatric Center as instructed by my insurance company, and got my appointment for the six hour orientation, held on April 6. It was so informative! The nurse who presented the information was wonderful, I found her to be informative and really funny.  She explained to us why HFH has been designated a Center of Excellence in this specialty, which made me feel better about the insurance company requiring me to go there.  After her section was finished, the bariatric nutritionist/dietician took over, and also gave so much great information, along with answering so many questions.  During her section another person was there to speak with us, and answer questions, a very nice lady who had this surgery 4 years ago.  She even brought a pair of her old jeans so we could see how far she has come since then.  She answered every question asked of her, including questions one might consider personal and/or intrusive, like how “much did you weigh before surgery” and “what weight are you down to now”.  The entire thing helped my husband and I understand what would happen during surgery.

I understand that part of my stomach will be cut away to create a much smaller stomach pouch, and both sections will be staple stitched to close. My intestines will be re-routed so that food can exit the stomach pouch.

I understand that I will need to make major lifestyle changes in order for this tool (the new stomach pouch) to work, and that it isn’t some “miracle cure” that would require no work on my part. I will make the changes necessary. I will learn to “eat to live” as opposed to “living to eat”. I will make some kind of exercise a regular part of my life.  I know that I’ll have to take vitamins and supplements for the rest of my life because some nutrients will no longer be able to be absorbed via my stomach.

I want to have this surgery because I want to be a better wife to my husband. I’d also like to not be too tired to take care of our home. I want to be able to go walk with him, and not have to constantly have to ask him to slow down for me.  I want to never again need to have him push me around the Detroit Zoo in a wheel chair.

I have four boys, 3 that are special needs, having been adopted after spending time in the foster care system. My eldest is age 17, was adopted at age 2.  He has Fetal Alcohol Syndrome, and is developmentally delayed.  My step-son is 13, but in many ways also younger than his chronological age, and has exhibited symptoms of Reactive Attachment Disorder. My twins are age 8, but one is effectively about 5 – 6, has mild mental retardation, and up until two years ago had been having seizures.  His twin is more seriously mentally retarded.  He is in many ways still a toddler, effectively.  We adopted the twins last year, finalizing in November.  My kids are home-schooled.  I want to live to care for them. I want to be able to do more things with them, like play, walk the nature trail in our county, and go for walks. 

I want to be able to buy my clothes in a regular store.  I can’t do that now.  

I want to get rid of the extension that is on my seat belt in the car. I want to go back to Shipshewana and not be afraid to try and go for a ride in one of the horse drawn buggies. I want to be able to ENJOY walking around to shop there, and in the giant Shipshewana flea market.

I want to be able to stop taking my insulin, diabetic meds, cholesterol and blood pressure meds.

I am now, and will continue to receive social support from my friends and family through blogging about my journey and reading their comments. I have friends who have been helping with child care so I can come to my appointments. I have one saint of a friend who has agreed to keep our children at her home (which is two and a half hours from our home) for the time I’m in the hospital. 

My church family is being very supportive, especially our Pastor and his wife, as their son-in-law had this very surgery two years ago. He is also a pastor and has sent me encouraging email.  Although it’s too far for me to come to the support group meetings (and would be difficult to get child car for those times), I am, and will continue to be, an active participant in the Henry Ford Hospital bariatric patient support group on yahoo groups. After my surgery, ladies from our church will bring meals for my husband and children for about a week, and will be of help in whatever ways they are able.

I am very excited about receiving this tool that will help me change my life.

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Paperwork, paperwork!

I’ve begun working on the questionnaires I have to fill out and have with me next Wednesday when I see the surgeon and the cardio exercise specialist for the first time, and have been considering what I want to put into my “letter of intent” that I also have to have written before my appointment. I’m thinking that a lot of things I’ve written here in this blog will be good for the letter.  I have read the book the surgeon required (“Weight Loss Surgery, finding the thin person hiding inside you” by Barbara Thompson), and have read (and re-read!) the huge binder full of information given to me at the orientation. I have given up drinking pop (as of March 31). I feel so ready to move on with this, but realize that they have their timeline and steps for a reason. I do hope that when I see the surgeon the goal he gives me for pre-surgical weight loss is an amount I’ll be able to do quickly, because they won’t schedule the surgery until I meet it, and I am really hoping to have it sometime this summer. I want to get on with the business of living a healthier, longer life. I am totally at peace with the decision I’ve made to have gastric bypass. I’ve received no negative feedback from anyone in my life, only positive and supportive, which shows me that my friends and famly are much more open minded than I realized.

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Discouragement

When I attended the 6 hour orientation for surgery, Wanda (the nurse who presented) said surgery would be about three months out from then, so I’ve been thinking in terms of end of July or so.  However, I asked on the yahoo group support list for Henry Ford Bariatric patients if that meant three months from orientation, or three months from the date of the surgical consult, and am being told it’ll be way longer, like eight months or so! I hope that doesn’t turn out to be the case for me….. Once I’ve committed to something I really need to just move along and do it.  The waiting is not good. I’m anxious about the time between now and then. I am committed to doing what the doctor wants me to do, but fearful of having to do it for too long.  That’s how we get to this point in the weight issues, we can lose weight for sure but keeping it off for a long time, or even continuing a weight loss diet long term, is where we become failures.  If my wait time for surgery is a long time away, am I just setting myself up to fail again bfore the surgery even happens? I hope not.  I need the help that surgery will bring, the tool to help me stick to a new way of eatimg. It’s already been proven I can’t do it on my own for any extended length of time.

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Hello world!

This is something new for me, I’ve never even considered blogging!  However, I’m embarking on a new journey in my life, and some dear friends suggested I blog about it.  So, here I am, jumping in to the world of blogs! I hope this will be both a good way for me to journal my experience and at some point, perhaps be helpful for someone else making a similar journey…

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